Please note that the purpose of this site is basically to try and help, or give a
small insight into this condition, I do not pretend or profess to be an expert
on the subject. I am just a the proud father of Sophie who at the age of 5
has had to battle with all the obstacles that life has put in front of her, and
battle she has. I will be delighted if this website gives anyone the slightest bit
of help or encouragement, and maybe by looking at Sophie's story, others
with this or any other problem can take something from it.
