Aaron's story
Aaron's story
life is so fragile
is this the end?
waiting....
Gift of Life
..life continues
Articles
LINKS
This is the story of my son Aaron an inspiration to us all…


Born here in Scotland, via an emergency c –section in August 1996 (enduced 3 weeks early) it was discovered he had a heart murmur.
He was transferred to Edinburgh Sick Kids where they found out just how bad things were, he had a heart condition called Fallots Tetralogy and required immediate surgery…. So at a ripe wee age of 6 days old Aaron underwent his 1st surgery!

As a direct consequence of his surgery and probably due to the enduction and c-section birth, he got something called NEC (Necrotizing Enterocolitis) which destroyed 3/4 of his small intestine leaving him with practically no bowel for absorption(27 cms). He was only 5 weeks old at this stage and we were so close to losing him then,we were told to "prepare yourselves for the worst" and told the next 24 hrs were crucial. He was put on artificial feeding via a gastrostomy and an IV line into his chest giving him TPN (Total Parental Nutrition)

Aaron remained in hospital, it took its toll on all of us, travelling up and down from the hospital, but we thought,”hey this TPN is the best thing since sliced bread!”
But it wasn’t for Aaron , at 8 mths old his liver was so damaged with a liver disease called cholistasis, due to this wonderous TPN being toxic to his liver and of course the little amount of food being absorbed via his gut… we were facing not only the prospect of a small bowel transplant but now a liver transplant too!

Aaron’s 1st transplant assessment was down in Birmingham Children’s Hospital in the Spring of 1997 where it was agreed by all that Aaron most definitely required both organs and was put on the transplant list!
Only to be informed 1 week later that he couldn’t be put on the list as he wouldn’t have withstood the transplant surgery, his heart was too weak and required more corrective surgery before transplants could be considered,we were devastated

To be” fit and well” enough for this necessary surgery was something Aaron was never going to be….. Or so we thought.

Aarons_gift_of_life
created 26/05/02